I hate this, I am sat at my desk looking at a patient recently sent to me from one of our cystic fibrosis wards.
Because we have wards staffed with nurses who are highly skilled and experienced in CF care I very rarely get to work with this kind of patient. Also because we are a high dependency unit I very rarely have to provide end of life(palliative) care. This patient is flirty-four, this is by far the oldest CF patient I have even heard of. She has been moved Into my care for end of life nursing.
It's not that I don't want palliative patients however my knowledge of her condition is textbook only, I fully admit I lack the skill and intuition that CF nurses have.
As a result my end of life care for this lady will be merely adequate, any dying patient deserves more than that.